Notes from this week/ Week in photos 13

NEWS FLASH! This weeks series is going to be #REALLIFE. Tune in next week for pretty photos and more fun vibes.
IMG_3749Came cuddles are the best thingIMG_3751IMG_3791Lunch on trays are also good!IMG_3774 IMG_3778Hospital bed selfies (cute gown!)IMG_3781 IMG_3782Weird hospital rooms and hospital “art”.IMG_3811 IMG_3815 IMG_3818Resting view innit (the lovely rain!)IMG_3835

So this week. A bit fat wobble of a week. The word of the week being HOSPITAL. I have been unable to escape it. Recovery also being a word of the week as well as wobble, emotional and useless.

Monday- Hospital appointment with my specialist that was quick and rushed > Home > Bed.
Tuesday- Bed and too tired to even move.
Wednesday- Operation/ Procedure day. Lots of lying on hospital beds and being wheeled about, prodded, scanned and poked. Left feeling in pain, dizzy and tired. They cleaned and swept my left knee with radioactive (!!!!) liquid to clean out all the bad inflammatory cells that attack my joints. My body creates these cells and they are evil. Why? Well we don’t know that yet. Monday is scan day and that will decide whether I have to continue with the same biological treatment as before or whether I will start with a new set of drugs. In the meantime its a waiting game. I am grateful that I am getting listened to and that this is being treated and that I am not just feeling like this is something I have done wrong and its all my fault (weird brain black holes where my thoughts disappear too!) Its also good to realise that this is REAL and not invented and as much as I have tried to hide it from people (especially at work) and am embarrassed by it it is there.
Thursday- Recovering at my inlaws. Being waited on hand and foot and being served food on a tray. Sleepy daze and barely human. I can’t describe how good it feels just to have someone looking after you and caring. I have missed this a lot as I tend just to get on with stuff here and try and ignore that I need that sometimes. I need to be spoilt and have “mimos”. It makes me feel weird to ask for help and I feel guilty that I am putting the other person out.
Friday- Yet more recovering and being spoilt. I got to go home in the evening though and had a dreamy sleep in my own bed with the pup and Borj.
Saturday- Sant Jordi and getting a rose. Also home made pizza club night ( a tradition in this house!).
Sunday- Yet more resting and netflixing and blog reading etc.
SO this week has been a tough one, one where it has made me feel not good enough and where I am the illness I have rather than Sarie who has this illness. I have wobbled and doubted and felt a whole lot of guilt and just felt like it has been too much. A drain on my loved ones and just in general a bit crap and useless. Next week shall be better and I can hopefully start to get out and about a bit more. I have also been quiet with a few of my projects because its ok to fall behind and allow my self time to recover, this doesn’t mean I am a massive failure (note to myself). Also all this time off is justified and medically backed up. Please remember this future Sarie if you are reading this!

So if I have been a crap friend/sister/daughter/colleague then I am sorry, I feel like I let a lot of people down and more than anyone myself.

 

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